Friday, December 4, 2009

Clearly now....

It's been a while since we posted. It is comforting to know that life has now become a happy normal for us all.

Will continues to improve and as you can see...he can see clearly now with his new glasses. Looking good.

Will News?
He is attending school full-time in regular classes. He has a one-on-one aide with him at all times to help him move around campus and to assist with work (they are amazing women!!!). He only uses his walker now and still needs someone nearby to correct his balance. But boy, is he strong!! Standing taller and stronger! At school he has PT, OT and Speech therapy. The team works wonders with him. The balance issue ("ataxia") will really only improve with time. Will also has two personal training sessions a week and his horse back riding class. With the rest of his free time ...he rests (very important), plays with friends, and keeps us on our toes with his energy and humour. He has really come such a long way.

Paige continues to be the worlds best big sister. So patient and concerned about Will. It is actually comforting to hear them arguing and getting on each other's nerves. Back to normal is good :) Paige is no longer playing club soccer (her decision) and has her focus on school sport teams. She wrapped up the volleyball season with her team winning the championship and is now the co-captain of her school basketball team. A great group of girls. With playing only one sport at a time, she now has more free time to just be a 13 year old girl - hanging out with friends, sleepovers, movies....and even spending more quality time with mom and dad. I encourage all families to take a look at their "scheduled" time versus free time with their children.

Will has expressed an interest in being a videographer....so you might be seeing some of his work on this blog soon.

1 comment:

Anonymous said...

many thanks for including our website! Good luck to you all.
Ava Easton, Development Manager at the Encephalitis Society in the UK. PS. we are coming over to the US next year with a view to potentially setting up a US branch - if you know any interested clinicians or philanthropists, I would be keen to have thier details.