We have been putting more miles on the van driving to and from Phoenix Children's Hospital. William had an MRI last week which shows that he has a mild reduction in inflammation on his brain. In a way this is good news. This means that as the inflammation continues to decrease (hopefully) he will continue to improve. We are still looking for that magic pill to make it all go away.
The fabulous rehab program and therapists he is with right now will disappear in a few weeks. Our medical benefits for "therapy" will run out. We will be working hard to work with our insurance and the state program to ensure he continues to receive some sort of therapy - most likely through an outpaitient clinic. We have been soooo fortunate to have been able to work with Rehab Without Walls. The team are like members of our family now.
The movie star..... William was invited back to Phoenix Children's Hospital yesterday to participate in a promotional video for their rehab program. It might be posted on their website when completed. Will was very cute with his answers and if he wasn't sure what else to say he said "and that is all I've got to say". They also interviewed me (Sylvia) and I was so NOT prepared for this - if I make the cut you will be able to tell by the bad hair day and lack of fashion effort :)
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